Monday, March 11, 2013

Finding my new normal - Part II

So why is there a Part II to this? It's because I want to share with you one of the things I learnt, through having cancer. There is no normal.

Of course there is, in one sense. As I said at the end of the previous post, I like being normal. "Normal life" is something we all take for granted... until it's wrenched away from us.. and then it seems like a golden blessing. As I write, I can see the buses going past my window, full of people going about their daily lives. Jobs, shopping, visiting. Who knows what they're up to? Most of it not very important, probably, but all of it part of a big whole. Each day, each element, is like a stitch in a tapestry, contributing to a picture.

Most people come through a major illness with a desire to appreciate the little things of life more, a determination to live every day to the full. I think that's wonderful. But it's also a bit exhausting. You can't do tapestry on speed. Tapestry is often a slow, plodding, meticulous task, and you can't fall down in admiration at every stitch. So yes, I do appreciate life and I do want to live to the full, but I do also have grumpy times (yes, really), and get fed up, and I don't remember to live each day as if it were my last.

The change I notice in myself, is the change of understanding of how life unfolds. Before cancer, I thought life was a line. I might deviate from the line, but then the task was to get back to it. For example, I battled with the idea of living abroad with the children for too long. I was happy for them to have an American experience, and I'd have talked about "broadening their horizons". But really, I looked on it as a deviation. Their real life was somehow hidden away in a cupboard in Britain, and I'd get it out and polish it up when we got back. But I now see how life exists in the deviations, because they're not deviations. They are the very stuff of life. And it's not just the visible. I think I'm able to accept change and disruption at my very core, in a way that I didn't used to. If I was a cake, having cancer wouldn't be a bit of the icing that's gone a bit wrong, that I can scrape off, and cover over with new icing. No. It's one of the ingredients, in the mix, in the baking, in every bite. It's in the flavour.

Unless I am alone in this (and I am perfectly happy to accept that I have a personal level of unique weirdness), I think it is an important truth, but also a difficult one to get hold of. I find it hard to explain. I see it in various aspects of life. Some of our deep insecurities come from a sense of not being who we ought to be. Even at a fairly superficial level, we are bombarded with the image of what our body should look like, what our face, our hair, should look like. When you move house, it's easy to feel permanently inadequate, because your house doesn't look like the ones in the catalogues, as they should. It's as if there is an imaginary straight line, that we are deviating from. But guess what? That imaginary line, where we're all slim, healthy, happy, fulfilled, with our scatter cushions perfectly arranged on our sofas, doesn't exist. When I had cancer, one of the overwhelming, yet hard to define, feelings, was that I shouldn't be having cancer. This shouldn't be happening to me. It was a deviation. But it did happen, and it still is happening, in that it is part of me now. I wouldn't be who I am, if I hadn't had cancer, and I am who I am. And that is it. To go back to my earlier example, I used to resent being in America, as it was somehow preventing the children from having the life they ought to be having the other side of the Atlantic. But I stopped seeing it like that. They are who they are, their lives are as they are, and that is enough. My house doesn't look like an IKEA catalogue, but that is.... hang on... I really would quite like my house to look like an IKEA catalogue. I guess I have some progress to make on that one.

I haven't described what I wanted to describe very well. I can feel words like "embracing change" and "acceptance" hovering around, ready to fall onto the page and sum this up for me.

And, if you've read this far, you'll be pleased to know that the results came back from the lab, and that everything they tested was benign. That was the word the doctor used: "benign". Maybe she had a sixth sense that if she said "everything was normal", it might have prompted a monologue on the word "normal". You can see I've been thinking about it... just a little.
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19 comments:

  1. I feel the need to discuss this over coffee. At length.

    But for the moment then, thank you. I don't think, no I know, I'd never really thought about this like this, instead always, as you say, feeling that I should be/do/make/think/insert verb here, something else, and if only I made some tiny (or indeed huge) adjustment my life would be as it should be. But you're right, my life is my life, and, as it happens, most of the time it's a very good one.

    I'm not making much sense, and certainly not as much as you did. But thank you, anyway. This post should be required reading.

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  2. Wey hey. Brilliant news. And you put it all so well.
    Although I haven't been through anything like you and PlanB have, I had a baby far later than I would liked, and it put paid to the plans I'd mapped out. It wasn't that I didn't want him, but when you have one vision of where your life is going, it's hard not to feel "deviated" when it doesn't map out. However, I very quickly started hearing about so many other people who had had these late babies, and of course, friends who actually went through genuine hard times etc. Now, I see it as part of "my story". This is what my life is so far. It wasn't a deviation, as you say; it's my life.
    Now excuse me while I go and do the school run (even though most of my friends are now empty-nesters!)
    PS. Really, brilliant news. x

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  3. Glad to hear things are ok :-)

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  5. I think this is one of your most insightful posts ever. It really speaks to me in terms of what I am going through at the moment. I'm still at the stage of thinking that this really shouldn't be happening to me, and haven't yet accepted it properly. It's interesting to hear it from your perspective. I am glad the test results were benign.

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  6. My parents were both diagnosed with cancer within two years of each other. My mother, fortunately, had an excellent outcome. My father did not. I spent (have spent?) years of my life struggling with the 'why me's' in all of this, and I still struggle with the loss of my father, with whom I was extremely close. I also grieve for my children, who were so small when he died that they barely remember him and have missed knowing a truly incredible person. For me, one of the things about a traumatic life experience is that you lose your illusion that life is a safe and friendly experience where bad things only happen in books and stories. I suppose I appreciate things in my life more because I'm aware of how much worse they *could* be, but at the same time, I have days where I feel very envious and resentful of people who have not had this kind of grief and fear touch their lives. I miss those days when I didn't worry about every single doctor's appointment or when those poignant photos and comments on FaceBook weren't like a knife in my gut. I suppose for me, 'normal' (if you'll forgive its use) means learning to live with 'why NOT me?' instead of 'why me?' I like your idea of all of our experiences being part of the tapestry instead of a deviation from the line.
    And I'm so very pleased to hear about your benign results!

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  7. I really like that idea that life isn't a line, that there are ingredients that get mixed up differently - wondering if thinking that way will help me embrace different and stop regretting opportunities that have passed us by

    Food for thought Iota

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  8. very pleased to hear your benign news, read your blog regularly and thoroughly enjoy it. am digesting your thoughts around deviations and textures, think you're spot on...must apply to my own thinking!

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  9. You are blooming sport on. People go on about life being the journey not the destination, but I love your analogy. It really does make you different, gives you a new normal. My experiences have taught me that it is pointless stressing about the stuff I can not change. Instead I have to change the way I think about that stuff.

    Benign is such a lovely word it really is and I am so glad that it was benign.

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  10. Brilliant writing and brilliant news. To use a massively trite saying: Life is what happens when we're busy making other plans. I bet your life plan never included cancer, but it has and it's now part of your story, straight line or not.

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  11. Fab news Iota. Great big fat phew from down here.

    And lovely writing as ever. Lots of rubbish stuff happened in my late teens to make me realise "why me/us?" was not an option, and that "stuff happens" is actually how life is. Doesn't stop me resenting those to whom stuff never happens, who still have grandparents let alone parents when they are parents themselves, and sail through life occasionally grumbling blithely about how grim their life is. My phrase is "we are where we are" - not "it is what it is" because there are some things we can change, but I find looking forward from the starting point of now rather than backwards to be helpful.

    SUCH fantastic news. Am so relieved.

    Love, much,
    J xxx

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  12. Pleased that your results were good.
    Love your blog. I am a new follower.

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  13. Glad that you have had good results. I'm also in clinical remission, whatever that means. Having cancer is not something I wanted, but I agree that it has shaped me (& you) in a way that wouldn't have happened if *it* hadn't happened.
    All the irritating things in life are in better perspective now.......
    I suppose we can learn & grow from all experiences.
    A good post.
    Maggie x

    Nuts in May

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  14. Thank you for this. I agree wholeheartedly with what you say and have found those deviations from the expected pathway to be rich experiences too (but often in hindsight!). This was really helpful for me today as I think about my teenage son struggling with A levels when it's not where his heart is. You have reminded me that for him the tapestry of life is an adventure to discover rather than the railway track of other people's expectations to get stuck on.

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  15. I do not know you, yet I worried about your test results.
    Benign.
    Beautiful.
    I am so happy for you.

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  16. YAYYYYYYYYYYY!!!!!!! I am really really pleased to hear your news, Iota.

    But also, what a beautifully written, thought provoking post. It's funny how we humans veer between aiming for normal and trying to 'be a bit different'.

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  17. So glad that to hear that everything was normal with your tests. What a huge relief! And good luck with finding your new normal! I'm really enjoying this series of posts. They're really making me think about what my normal is :-)

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